Spitzenvertreter der AOK fordert vom Hersteller des Gentherapeutikums Zolgensma – das mit einem Preis von zwei Millionen Dollar teuerste Medikament der Welt – seine „kommunikative Passivität“ aufzugeben, um nicht weiter ungerechtfertigte Hoffnungen bei Eltern von an Spinaler Muskelatrophie erkrankten Kindern zu wecken. Das zeigt ein Briefwechsel zwischen Matthias Mohrmann, Vorstands-Mitglied der AOK Rheinland/Hamburg, und der Deutschland-Geschäftsführerin der Novartis-Tochter Avexis, Andrea Hofmaier. Die Schreiben liegen Tagesspiegel Background vor.
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