Im Alter von 17 Jahren wurde bei Marina Stüber die Friedreich-Ataxie diagnostiziert. Noch in ihrer jugendlichen Entwicklungsphase musste sie mit der emotionalen Last fertig werden, dass sie an einer autosomal rezessiv vererbten Krankheit litt, für die es noch keine Heilung gibt. Ataxie ist der Oberbegriff für verschiedene Störungen der Bewegungsausführung. Mangelnde motorische Koordination und ein torkelnder Gang gehörten zu den ersten Symptomen, die Stüber erlebte. Die heute 46-jährige Mutter eines Sohnes sitzt seit zwei Jahrzehnten im Rollstuhl, hat Schwierigkeiten beim Sprechen, zudem Blasen- und Darmstörungen. Stüber musste lernen, mit der fortschreitenden neurodegenerativen Erkrankung zu leben – wie auch weitere 16.000 Menschen, die in Deutschland an Ataxien leiden.
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