Sie heißen Seltene Erkrankungen (SE), sind es aber in ihrer Gesamtheit keineswegs. Statistiken zufolge leiden hierzulande 4,5 Millionen Menschen darunter, also mehr als fünf Prozent. Das Problem dabei: Unter dem unspezifischen Oberbegriff sind bis zu 8000 unterschiedliche Diagnosen zusammengefasst. Pro Erkrankung ist eine derart geringe Zahl von Menschen betroffen (laut Definition weniger als fünf von 10.000), dass diese im Gesundheitssystem quasi untergehen.
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