Zolgensma gilt als eines der teuersten Arzneimittel der Welt. Es verspricht: Rettung vor Tod durch Ersticken, in einigen Fällen womöglich sogar Heilung – mittels einer einzigen Infusion, rund zwei Millionen Euro teuer. Und es adressiert eine der vulnerabelsten, immense Beschützerinstinkte weckende Patientengruppen: Kleinstkinder, die unter einem seltenen Gendefekt leiden. Unbehandelt führt er zum Verlust von Nervenzellen im Rückenmark, und damit zu Nicht-Sitzen-, Nicht-Laufen-, Nicht-Schlucken-, Nicht-Atmen-Können. Zolgensma, das ist mehr als ein Arzneimittel – es ist ein Reizwort, in jeglicher Hinsicht.
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