Forschung, das sei der erste Schritt zur Heilung, sagte gestern Eva Luise Köhler zum Auftakt des „Rare Disease Symposiums“ in Berlin. Darum unterstützen sie und ihr Mann Horst Köhler, der ehemalige Bundespräsident, mit ihrer gemeinsamen Stiftung auch die Erforschung Seltener Erkrankungen. Wichtige Meilensteine seien in den vergangenen Jahren bereits erreicht worden, sagte Eva Luise Köhler. Dazu gehöre die Erarbeitung des Aktionsplans des Nationalen Aktionsbündnisses für Menschen mit Seltenen Erkrankungen (NAMSE), der nun auch in die Regelversorgung übertragen werden soll.
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