Heute jährt sich der Tag der seltenen Erkrankungen und mit ihm stehen vier bis fünf Millionen Deutsche im Fokus, die an einer der rund 8.000 Krankheiten leiden, die als selten gelten. Eine von ihnen ist die bald drei Jahre alte Emilia* aus Berlin. Ein fröhliches, kleines Mädchen mit wahnsinnig viel Energie, das oft lacht und vor nichts Angst zu haben scheint.
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